The Evolution and Everyday Practice of Collective Patient Involvement in Europe

Summary Samenvatting Zusammenfassung Sammanfattning Acknowledgments -- or: The Jigsaw Puzzle Contents 1. Introduction 1.1. The Underlying Puzzle of the Book 1.1.1. Health system types 1.1.2. Changed roles in healthcare and involvement 1.2. Aim and Question of the Book 1.3. Structure of the Book 2. Patient Involvement -- of Whom, What for, and in What Way? 2.1. Forms of Involvement and Legitimacy 2.2. Equivalents to Patient Involvement 3. A Theoretical Framework for the Study 3.1. Institutionalism 3.1.1. Historical institutionalism 3.1.2. The basic idea about actor-centred institutionalism 3.1.3. Strategic actors 3.2. On Agendas, Ideas, and Paradigms 3.2.1. Ideas 3.2.2. Policy Paradigms 3.3. Conclusions 4. Methodology and Study Design 4.1. To Begin With: What Methodology Suits Question and Theory? 4.2. Case Study Design 4.2.1. Choice of countries and "plausibility probing" 4.2.2. Pitfalls on the way -- Or: What to learn from previous case studies 4.3. Historical Processes 4.4. Methods, Sources, and Analysis 4.4.1. Methods and Sources 4.4.2. Analysis 5. The Netherlands 5.1. Introduction 5.1.1. The Dutch welfare state -- A unique case 5.1.2. Care and healthcare provision -- An overview 5.1.3. A long history of involvement 5.1.4. The political system, parties, and trade unions 5.2. Sources 5.3. Pillarisation and Depillarisation as Societal Preconditions for Involvement 5.4. Developments in the Health Insurance -- A History of Attempted Cost-containment 5.4.1. Growth control by legislative regulation 5.4.2. From sickness funds to private health insurances 5.4.3. Patient rights 5.4.4. Emergence and origins of the patient movement 5.4.5. Patient organisations and involvement on the rise 5.4.6. The rise of popularity of involvement in the political sphere 5.5. The Legislative Process to Collective Patient Involvement 5.5.1. WDFI -- Bill on the Democratic functioning of subsidised healthcare institutions (1984) 5.5.2. WDFZ -- Bill on the Democratic functioning of (health)care institutions (1988) 5.5.3. WMCZ -- Client participation act 5.5.3.1. The legislation process of the WMCZ (1992-1994) 5.5.3.2. The character of the WMCZ 5.5.3.3. The underlying idea is subject to change 5.5.3.4. Further developments 5.5.4. Summary 5.6. Valuation of Implementation 5.6.1. Change over time -- An overview 5.6.2. One law to unite them all 5.6.3. The way of working together 5.6.3.1. Filling the legal framework with content 5.6.3.2. Management -- or: The clash of two lifeworlds 5.6.3.3. Influence, competences, and professionalisation of client councils 5.6.4. Client councils as a countervailing power? 5.6.5. Problems 5.6.5.1. Representativity and legitimacy 5.6.5.2. Sticking point hospitals 5.6.5.3. The relation to patient platforms and related difficulties 5.6.6. Conclusion 6. England 6.1. Introduction6.1.1. The NHS 6.1.2. The political system, parties, and interest groups 6.1.3. Decentralisation 6.2. Sources 6.3. Patient and Public Involvement Within the NHS 6.3.1. Equivalents to patient involvement within the NHS 6.3.2. Formal means of public involvement -- A continuous story of discontinuity 6.3.2.1. The outset of patient involvement -- Community health councils 6.3.2.2. Lack of accountability and legitimacy 6.3.2.3. From unwanted interference to valued input 6.3.2.4. On ill-fitting categories and conceptual difficulties of the existing participatory structure 6.3.3. Summary -- 'Reorganisation as an obsession' 6.4. NHS Foundation Trusts 6.4.1. The NHS trust as precursor -- 'Foundation trust light' 6.4.2. Foundation trusts -- Concept, structure, and supervision 6.4.3. The legislation process -- Legislation on the fast-track 6.4.3.1. Quality of care and performance -- The main target 6.4.3.2. Decentralisation and independence -- The tool 6.4.3.3. Democracy and accountability -- A nice add-on 6.4.4. The legislation process -- Cross-party concerns 6.4.4.1. Party politics and stra... Mehr